This story of little Kris really touched my heart and I am not the only one who started to realise how precious health is.
19-month-old Kris was born with spinal muscular atrophy. Spinal Muscular Atrophy (SMA) is a genetic neuromuscular disease characterised by muscle atrophy and weakness. The disease generally manifests early in life and is the leading genetic cause of death in infants and toddlers.
Because Kris doesn’t have enough strength, he can’t sit or walk on his own and his parents are taking care of him 24/7. At the end of May this year, the U.S. Medicines Agency approved a ground-breaking drug called zolgensma, which cures the disease in one single dose. However, this medicine is only suitable for children under the age of two and costs an astronomical £2 million which must be raised before Kris reaches 2 years old.
It’s the most expensive single dose of the drug so far, but we have hope to raise the money together. Please share this and if you can help donate on the link below.